James Madison University

Caregivers Community Network’s Links & Resources

Virginia Department for the Aging: Keep up with the latest news in Virginia

2010 Senior Advocate Resource Guide

http://www.alzmindthief.com/

National Alliance for Caregiving recommends the following website to obtain more information on healthcare reform:

Caregiving Web Sites

Caregiving.Com
Featuring monthly, free webinars which help family caregivers as well as professionals working with family caregivers as well as other helpful information.

Caregivers: You Have Needs Too!

Family Caregiving 101
If you're caring for a loved one who is ill or disabled, this site was created for you. It's a great place to find assistance, answers, new ideas and helpful advice — for you and your loved one.

SeniorNavigator
SeniorNavigator is a website that provides free information about the health and aging resources available to Virginians. The information focuses on senior related issues such as health and aging, financial concerns, legal questions, health facilities, assisted living and housing, exercise programs, support groups and more. The information is organized on this website, and allows you to search using your ZIP code. Searching by ZIP code identifies the resources available in your community.

The 7 Deadly Emotions of Caregiving
By Paula Spencer Scott How guilt, resentment, and other powerful caregiver feelings can raise your stress and sap your energy -- and what you can do to avoid the damage.

The Rosalynn Carter Institute
The Rosalynn Carter Institute establishes local, state and national partnerships committed to building quality long-term, home and community- based services. We believe this begins with providing caregivers with effective supports and making investments that promote caregiver health, skills and resilience. We also believe strongly in the need to provide greater recognition and support for professional and family caregivers. Our focus includes supporting individuals and caregivers coping with chronic illness and disability across the lifespan as well as limitations due to aging

The Rush Manual For Caregivers
Written for family caregivers by Rush Alzheimer’s Disease Center, this current publication includes thirty chapters on stages, treatment, communication, intimacy, coping, spiritual needs, legal matters, traveling, driving, exercise, hygiene, incontinence, nutrition, and more. This is a comprehensive article; a must for caregivers.

Alzheimer Web Sites

Alzheimer's Association
The Alzheimer’s Association, a national voluntary health organization, provides information and services to people with Alzheimer’s, caregivers, researchers, physicians, and health care professionals.

Alzheimer's Forum
A compendium of information for researchers, physicians, and the general public, the site includes news, articles, discussion forums, interviews, diagnostic and treatment guide, directory of drugs, clinical trials, and research advances. It also provides access to such unique tools as directories of genetic mutations, antibodies, patents, and conferences.

Alzheimer's Disease Education and Referral Center (ADEAR)
ADEAR maintains information on Alzheimer’s disease research, diagnosis, treatment, drugs, and clinical trials, as well as Federal Government programs and resources.

Health Information on Alzheimer's Disease from the National Library of Medicine
An all-in-one search site, this page provides links to recent news items, symptoms and diagnoses, research, statistics, clinical trials, coping issues, and other resources.

Research Tools

Alzheimer's Disease International (ADI)
The ADI website links to Alzheimer’s disease associations in 75 countries around the world. It lists information about Alzheimer’s Disease for both the victim and the caregiver, in over 25 languages.

Clinical Trials of Alzheimer's Disease
Persons with Alzheimer’s Disease, family members, and members of the public can find current trials and research. The searchable database provides information on the name of the study, the purpose, eligibility, and contact information. Also, the site indicates whether the study is recruiting patients and includes citations from published works.

Manual of Geriatrics
The electronic version of the manual written by a group of accomplished physicians is intended to help both families and professionals find descriptions and treatment information on conditions prevalent in the elderly. Nineteen sections, averaging ten chapters each, cover a wide range of disciplines and geriatric diseases.

Resources

Caregiver Guide (PDF)

Facts about Alzheimer’s Disease

Alzheimer’s Association Facts and Figures for 2012